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Further Information

Review of learning disability deaths - 2018 annual report published

Bristol University have published the third annual report of the English Learning Disabilities Mortality Review (LeDeR) programme. It presents information from the reviews completed in the 2018 calendar year about the deaths of people with learning disabilities (aged 4 years and over).

Since the review programme opened on 1st July 2016 and up to 31st December 2018, 4,302 ‘in scope’ deaths have been notified to the programme. By the end of December 2018, the review process had been completed for a quarter (25%) of these deaths.

One in 10 (10%) included a multi-agency review.

Reviews were in progress for a third (37%) of the notified deaths by the end of December 2018. However, 38% of the deaths were still waiting to be allocated to a reviewer, indicating continuing and significant problems with the timeliness with which reviews of deaths take place.

Click here for the LeDeR 2018 annual report.

For ease of reading, data tables are not included here but are available from leder-team@bristol.ac.uk on request.

LeDeR is the first national programme of its kind aimed at making improvements to the lives of people with learning disabilities. Reviews are being carried out with a view to improve the standard and quality of care for people with learning disabilities.

The LeDeR programme is delivered by the University of Bristol. It is commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England. Work on the LeDeR programme by the University of Bristol commenced in June 2015, initially for three years. The contract has since been extended until the end of May 2020.

Click here to read more about LeDeR.